The Ivan and Joan Foundation was born out of unimaginable loss and a powerful mission. After losing her two children, Ivan and Joan, to Fanconi Anemia a rare and life-threatening disease, Winlady Boniface transformed her pain into purpose.
We create a supportive environment for patients and their caregivers affected by Fanconi Anemia and other rare diseases, and to strengthen the support network to improve their quality of life.
Ivan & Joan Foundation, in collaboration with the Kilimanjaro Christian...
Ivan and Joan Foundation, in collaboration with Bugando Medical Centre,...
Ivan and Joan Foundation participated in the 2026 Pediatricians Scientific...
Ivan & Joan Foundation, in collaboration with the Kilimanjaro Christian...
We raise awareness of Fanconi Anemia and educate the community and medical...
Fanconi Anemia is a rare but life-altering genetic disorder that families in Tanzania face in silence often without access to timely diagnosis, treatment, or emotional support.
Fanconi Anemia is a rare disease—but for many families, its impact is deeply personal. Our downloadable awareness booklet is a carefully curated resource with facts, symptoms, real stories, statistics, and ways you can make a difference.
Download the Awareness BookletYes, support is available. The Ivan and Joan Foundation is dedicated to helping families in Tanzania who are affected by Fanconi Anemia. They offer guidance, emotional support, and resources to help families navigate this rare condition and connect with others facing similar challenges.
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We support children with rare diseases through awareness, advocacy, and Psychosocial care turning pain into purpose. We are working to establish Tanzania's first FANCONI ANEMIA diagnostic center to ensure timely, accurate identification of rare conditions and better access to treatment.